Little Marian McGlocklin is the youngest patient in the world to be receiving an investigative treatment for Alzheimer's.
At just over nine months old, this beautiful little girl was diagnosed with Niemann-Pick type C (NPC), which affects less than 3,000 children in the world. Those with the condition rarely live past the age of 10.
Marian's case is different though, she was already born with the developmental delays, so her progress in areas of speech and motor function have been really slow.
"We noticed Marian wasn't reaching certain milestones on time, at first doctors told us there was nothing wrong with her and it took seven months for us to finally get a diagnosis.
"She remembers who we are and doesn't have any of the advanced symptoms just yet, but she does have a few early symptoms including forgetfulness."
The fatal disease causes enlarged organs, loss of balance, muscle stiffness, dementia and difficulty speaking.
The baby's parents, Sara, 34, and Paul, 33, were heartbroken to hear of the diagnosis and terrified for her future. Thankfully, they found out about clinical trials in Chicago that might be able to improve the quality of their little girl's life.
How the parents found out, and what's in store for baby Marian, on the next page