Langerhans cell histiocytosis, or LCH, according to the Histiocytosis Association, occurs when the body stores too many immature Langerhans cells, which are part of the family of cells called histiocytes.
Langerhans cells are found in everyone’s body – they are a kind of white blood cell that helps the body fight off infections.
In LCH, there are too many Langerhans cells, and the build-up can cause tumors and even damage organs. Doctors do not yet know what causes Langerhans, but they do not think it is an inherited disease.
It is not caused by any known diseases, and it is not contagious. Only about 1 in 200,000 children get LCH and occurs most in children between the ages of 1 and 3. Sometimes the symptoms go unnoticed.
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