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Parents Of Sick Baby Boy Are Fighting To Prevent A New "Charlie Gard" Tragedy

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Alfie Evans is just over a year old, and in that short amount of time he's gone through more hardships that most people do in a lifetime.

The adorable baby boy was born without complication, on time and at a healthy weight, and went home with his loving parents 3 days after delivery. His father, Thomas Evans, wrote that Alfie is a sleepy baby, but after a few weeks they began to notice something was wrong.

Change

When Alfie was a wake he would seem agitated, he'd feed well, and he grew normally, but he was starting to miss his milestones; like lifting his head, staring at faces or chewing on things. They also noticed something more disturbing: he was having seizures.

As time went on Alfie only got worse. His seizures intensified and complications began arising. He was put on life support before his first birthday.

In January Alfie's family was told that the outlook wasn't good for their son.

Mirror

"They told us in the new year that Alfie wasn't going to make it, so we had him christened," wrote Thomas in an emotional blog post. "We thought we were going to lose our son!"

Not even a year old and Alfie proved himself to be a fighter. The doctors thought he had no chance, but were shocked when the baby beat his infection and was able to start breathing on his own again. He was removed from support systems in March and began moving and opening his eyes soon there after.

For a short time it seemed like Aflie had staged a miraculous comeback, but he caught another chest infection and had to go back on machines to help him breathe. Again, doctors expressed their doubt about his ability to come back from this infection. They informed the family of their intentions to turn off life support, and advised them to get lawyers.

Royal Blue

If this case seems familiar it's because many parts echo the recent tragedy of Charlie Gard. He was a young boy with a mitochondrial condition that left him without hope of survival. The NHS in Britain wanted to stop treatment and turn off life support, but his family fought them in court. The family lost and Charlie passed away on July 28.

Alfie's case is gaining attention now, and a fundraiser for the family has raised over £19,000. Recent tests on the boy indicate he might suffer from the same condition as Charlie, which currently has no cure.

But Alfie and his family aren't giving up.

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